TRPS Support Group UK – support for Trichorhinophalangeal Syndrome

Welcome to the TRPS Support Group UK Website

TRPS Support Group UK provides sympathetic support to those with trichorhinophalangeal syndrome and their families.

We are a small, not-for-profit organisation run by our members who all live daily with the effects of TRPS.

Our main aims are:

  • Helping others who may be without support or information about the condition
  • Giving reassurance to others through our own experience
  • Raising awareness of TRPS amongst the medical profession and the general public

We offer support in a variety of ways:

  • Providing a forum for exchanging knowledge and seeking further information
  • Helping others to source clinical help and management
  • Providing a listening ear when needed
  • Exchanging emails
  • Arranging introductions


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